So Long I'm Six from The Panic Room Videos on Vimeo.
The album is a Kids album Parents will also enjoy. Featuring songs from a bunch of great indie artists, including a new favourite of mine Scampi (She is super cute, have you seen her songs on youtube?!). I also love the song Nothing by Steve Foxbury which is the backing track to the video posted above. Anyways, you can listen to a preview of the songs using the widget...
And if you'd like to help, you can buy a copy of the album on iTunes or make a donation via the widget. 100% of the proceeds will go to helping understand more about this rare genetic disorder.
PS> dofunstuff :)
PSS > read more about LB, SMS and how you can help on Ryan's blog Pacing the Panic Room.